Carrying on in Shane’s spirit

Editor’s note: Sept. 13th marked the second anniversary of the day Shane Edward Tanzosh died to ARVC.
Young men and woman mostly athletes, can develop this undetectable heart condition, ARVC which stand for Arrhythmogenic Right Ventricular Cardiomyopathy.
After his death, his family created a foundation to contribute funds towards research at Northwestern University.
By way of increasing awareness of ARVC, The Warwick Advertiser is printing a letter the Tanzosh family sent out after Shane’s passing.

The Tanzosh family would like to extend our thanks and appreciation of everyone who have supported us and continue to support us since the passing of our beloved son, brother, and friend Shane Tanzosh.
From the cards, to flowers, plants, meals, kind words, phone calls, letters, posts, pictures, and any other contributions- we thank you from the bottom of our hearts. It has been the most difficult time for our family to date to lose Shane at such a young age. Words can’t fully express how much we have appreciated all the love we have received.
Shane’s impact on this world is evident everyday as we receive support from those who loved him. We have lost a wonderful young man, and a future that was beyond bright. As we try and cope with our new reality we also want to thank everyone for their patience. We aren’t always able to respond and sometimes we forget to circle back, but none of the support we’ve received goes unnoticed.
Many of you have asked how Shane passed. It took nearly two months for us to get an answer. Shane died of a rare genetic mutation of his heart. The cause of his death is called Arrhythmogenic Cardiomyopathy.
This disease is very hard to detect. Shane had symptoms throughout his life but unfortunately normal heart tests did not show this problem.
There is still much to learn about this rare disease which is the No. 2 killer of young athletes. In Shane’s honor, we have created a foundation to contribute funds toward research which is being conducted at Northwestern University. Their goal is to come up with simple standard screening for early detection.
We wish to do anything that would help other families, so they might not have to endure the loss we are experiencing. We also know Shane would have wanted this. Please share this post to spread the word and awareness around this disease.
Any little bit counts.
Contributions may be sent to:
The Shane Edward Tanzosh ARVC Heart Foundation, Inc.
9 Cortland Drive
Warwick, NY 10990
The website is: shanetanzosh.com
Again, we thank you all for your support and love. We will never fully recover from the loss of Shane but we hope this foundation may aid us in carrying on his spirit. We hope that this foundation will help carry on his legacy of always showing kindness and love to those around him.